Lacey Buchanan

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Leading the Blind

On February 18th, 2011, our lives were changed forever when our son Christian Taylor Buchanan entered the world. He was born with a bilateral cleft palate and lip and almost completely blind. This blog is the story of his life, the joys we share, the challenges we encounter, and the amazing and trying journey ahead of our family!

Today I Failed As a Parent

Yes, you read that title correctly. Today I failed as a parent. Being a mom, being a good mom, has always just come naturally to me. I have a wonderful mom who really influenced that nurturing instinct in me. There's a saying that a child can only give what they receive, and I must say I received a lot of affection and nurturing and love in my childhood, and so it's always come easy to me to give affection and to nurture and love. And I feel that so far, in my 2 years and 10 months of mothering, I've done a pretty good job.

But today, I really feel like a failure as a parent. Three weeks and 1 day after Christian's first palate reconstruction, I failed him. Three weeks and one day after Christian underwent major reconstructive surgery on his palate, I messed up big time. Day one into being released from wearing his arm restraints, I allowed Christian to go play in his brother's room unsupervised. This wasn't an issue or problem before surgery because our house is small and I can hear him at all times, there's nothing in there for him to get into except a toy box, and I peek in often. However, after surgery, we were on high alert. There was to be nothing, absolutely nothing in Christian's mouth for fear of puncturing or opening up his palate. The arm restraints were to prevent him from putting anything in his mouth himself by stopping his elbows from bending, but he didn't have to wear them anymore after yesterday.

Today Christian sat in his brother's room, not being watched, without his arm restraints, and it happened. He punctured a hole in his palate. I'm not sure how or on what, I just know it's there, and I am sick. My immediate reaction of "Oh God, no!" scared Christian a little bit. I guess he thought he was in trouble. As I frantically begged him to open his mouth and let me see, he became more scared. And there it was. His beautifully reconstructed palate punctured. My heart sank, I burst into tears, and my logical self began thinking what course of action needed to be taken.

There was no blood, and no safety concern for Christian, so I decided just to call his doctors office and leave a message. Realizing that it was too late in the day to get a call back from them (they are an hour ahead of me) I called Christian's Mimi who has been to all his appointments with me in Indianapolis and asked her what I should do next. She instructed me to call one of the surgeons who had operated on Christian, Dr. Costa, and email Dr. Flores, the main surgeon on his case. Dr. Costa called me back and, at least, put my mind at ease in assuring me that we probably don't need to rush to Indianapolis for emergency surgery.

I could absolutely kick myself for letting it happen. Why didn't I just make him play in the living room? Why didn't I just leave the arm restraints on him? Ugh!!!!!!!! I am so mad at myself. Today I have failed Christian. I know he won't remember this incident, but I know it will stay with me.

Love is not what I thought

A revelation, if you will, that I recently had.... I've read Corinthians Chapter 13 many times. Many, many times. It's quoted at weddings, it's celebrated as the "love chapter," there are even songs written about it ("Let my life be the truth, the truth of your love. Let my love look like you, and what you're made of. How you lived, ...

Why I Won't Allow My Toddler to Have Cosmetic Surgery

It strikes me as odd that I have been asked many, many times if I will have Christian undergo cosmetic surgery to repair his birth defect. Apparently, it's not an odd question to most people, because I could not tell you how many times I've been asked. The number literally lurks somewhere close to 500, if I had to guess. ...

Is This Really What Our Society is Becoming?

Is this really what our society is becoming? I had to ask myself the question when I came across this photo on my Facebook feed today. As I read, I could feel my face getting red. My heart just broke for the mother who had to open this piece of trash, and my temper flared at the thought of someone ...

My Theory on Society's Outlook on Disabilities: The Cookie Cutter Standard

I'm sure by now that anyone who follows this blog knows of my passion for spreading awareness of the differently abled and advocating for fair and equal treatment for those with disabilities. That passion has led me to a theory that I'm pretty proud that I thought up. :) So I wanted to share it with you guys in hopes ...

Fifty years from now, I won't remember the number of diapers I changed. I won't remember that feeling of desperately needing sleep or the frustration of trying to make you mind. I won't be able to count exactly how many trips we made to doctors visits and the emergency room. I won't care about how many times I got thrown ...
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